There are lots of support groups out there.
Here are some examples:
1) Encopresis.com - This site offers a book and an online forum for treating encopresis.
2) UCanPoopToo.com - This is a comprehensive online program with videos, chats and reading materials.
3) Facebook support group - A great place to ask questions and get advice.
4) Doctor Daum - A pediatric GI doctor who provides personalized treatment plans via telephone. I didn't know about this doctor when we were struggling with encopresis, but I wish I had!!
Have you used any of these support tools? Were they helpful?
Like you, I started a blog (www.extendedpottytraining.com) to help other parents get support. When I started my blog, I didn't know (yet) that my son had encopresis! Now I am shocked at how long it took us to get the diagnosis. I think this is very common for enco families as parents struggle in silence or have to search a long time before finding the right support or medical provider for their child. I am a member of both the Soiling Solutions forum and UCanPoopToo. They have been wonderfully helpful! I am not on Facebook, but I'd be very happy if someone could post a link to my blog on the Facebook support group for Encopresis families. I also have a link to a survey on my blog for parents to take to share about the emotional challenges they and their child(ten) have faced when potty training has taken a really long time. It sounds like we had similar emotional reactions while potty training our children with encopresis and were able to find a silver lining in the journey (like becoming more compassionate). I encourage you and other readers to visit my site and take the survey.
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